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Care provided by generalists at the end of life: scoping exercise on research priorities February 17, 2008

Posted by western4uk in Palliative Care, Primary Care, Research, Supportive Care.
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Care provided by generalists at the end of life: scoping exercise on research priorities - Summary from the National Institute for Health Research considers the care that most people receive at the end of their lives from generalists  such as GPs, district nurses, hospital consultants and staff, nursing home staff and other health and social care professionals.

Key Findings:

  • Generalist end of life care is care provided by many different practitioners who are not specialists in palliative care.
  • The scope of generalist and specialist care is a matter for debate and variations in practice are evident. Definitions of ‘end of life’ care also vary, sometimes incorporating palliative care and sometimes referring just to the last few days of life.
  • The limited research in this area has tended to describe existing services or needs, rather than to evaluate models of care or to examine health economic effects.
  • Stakeholders are keen to see more research on models of care and place of care.
  • Recommended priority areas for future research are:
    • defining and evaluating models of collaborative working in primary and secondary care
    • defining and evaluating models of out-of-hours provision
    • reviewing place of care and place of death for people dying from non-malignant disease
    • defining and evaluating models of care provided in different hospital settings.
  • Research in each of these priority areas should include, in all settings, information on the:
    • patient and carer experience
    • resource and health economic effects and implications.

Three Final Reports have been produced.

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